Welcome to my blog about daily life with IIH
I hope to by writing this blog that I will be able to fill my brain with knowledge about this rare disease that I have. I know that there are many of you out there so please follow my blog and we can share information. I just recently got diagnosed so I am in the beginning stages of treatment. Thank You
Friday, September 16, 2011
Eextreme Pain, WHAT DO I DO??
So, my back is still hurting like nothing else I have felt, I am use to the constant eye pain, the pain in arms and legs, and the constant head pain. This is a different pain like a dull ache. All the way up and down my spine. I tried to refill my medication through my neuro a few days back which it was declined. My husband and I had drove up there to find out why it had been decline. In his words were " I only find out whats wrong, and I don't feel comfortable writing for pain medication." So I was pretty mad as a few months back my primary doctor had quit writing the script because he thought my neuro was writing for the medication. Which he only did once. So now i have been stuck without anything for about 3 days. I am not sure what to do. I had phoned my primary doctor to see if they could fill it and let them know what was going on with the neuro. I hope that they are able to because i don't know if I can take this too much over the weekend. I thought about self mutilation to help take some of the pain away because you can only feel pain in one spot at a time. I just don't know what to do. There are no answers out there for me. No one will give me answers its just waiting. Im not addicted to pain medications but i am addicted to not feeling pain. When I am in pain i take it out on my family members, mostly my husband. I can see that he gets irrated with me taking pain medication but.... It makes me be able to do more things around the house. This is a cry out for help, for answers for something!!! OTC pain medications are not working and I keep taking more in more to try to help, I fear I am doing more damage than good to my body by doing so.
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