Well i am pretty new to this bogging, So I will try to give it a shot.
I have just recently been diagnosed with Idiopathic Intracranial Hypertension also known as Pseudotumor Cerebri. It is a disease that is characterized by increased intracranial pressure without having a tumor or any other disease. It causes me to have very bad headaches that will last up to four days at a time in which i would have to go to the emergency room to have a therapeutic spinal tap. For me it went undiagnosed for a very long time which in turn caused my optic disks to swell to wear I have permanent visual loss and damage to my eyes. It also can cause pain and tingling sensations in your extremities. It also can cause tinnitus (ringing in the ears) and hearing loss. Often times with IIH you can hear your pulse within your hears. Other symptoms can include severe neck stiffness making it difficult to move, dizziness, lightheadedness, and balance problems which can range from mild to sever depending on the person. Short term memory loss is a big problem for me. Half the time I can never remember if have taken my medications or not. I need constant reminders. Also exercise can make the symptoms worse so at times it might become intolerable.
So that is the basics of what I have to go through on a daily basis. I hope to connect with fellow IH'ers which i have done so on Facebook.
No comments:
Post a Comment